Community Discussion & Support
Welcome to a space where your voice matters.
The journey through a neurotoxin injury can be incredibly isolating. You may be scared, filled with questions, and feeling alone. Here, we know that your experience is real, your symptoms are valid, and your questions deserve to be asked.
This page is the heart of our community. It is a place to ask questions, share your experience, and connect with others who understand this unique journey. If you feel ready, please use the comments below to share your story or ask a question. By talking with each other, we shed light on a hidden epidemic and find strength together.
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A Space for Questions, Not Prescriptions: Asking questions about others' experiences is welcome (e.g., "Has anyone else dealt with this symptom?"). However, please do not ask for or give direct medical advice. We are peers sharing experiences, not medical professionals giving treatment plans.
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Thank you for your courage. Your voice is a vital part of a truth that must be told.
— JB
I would love to find out more about Toosendanin. I wonder if Botox has contributed to my wide spread chronic pain. My muscles become completely tense and rock solid and will not let go. Toosendanin sounds like it would be helpful for my situation but I can’t find much about it online.
ReplyDeleteThank you so much for your comment and for sharing your experience. I'm so sorry you're dealing with such intense and widespread chronic pain. What you're describing—muscles becoming rock solid and tense—is a symptom that many in our community can unfortunately relate to.
DeleteTo answer your first question, while Botox is used to paralyze muscles locally, a systemic reaction can throw the entire autonomic nervous system into a 'fight-or-flight' state. This can lead to the widespread, paradoxical muscle tension, spasms, and pain you're describing. So yes, it is absolutely possible that it contributed to your condition.
Regarding Toosendanin (also known in Traditional Chinese Medicine as Chuan Lian Zi), you're right that there isn't a lot of information about it online in the way we think of Western supplements. I've learned that it's not considered a direct 'antidote' in TCM. Instead, a skilled practitioner uses it to treat the symptoms of toxicity by regulating the body's energy and clearing heat, which aligns with its function to help stop pain.
However, and this is critically important, the research I've found emphasizes that Toosendanin is slightly toxic itself and should never be taken without the guidance of a qualified TCM practitioner who is an expert in herbology. An incorrect dose can cause serious neurological and digestive side effects. For this reason, it's not something you can typically buy over the counter.
I know how desperate we can feel for something that might help, but for this specific herb, finding a trusted TCM practitioner in your area would be the only safe path forward. I hope this helps, and I wish you all the best in finding some relief.
Yes Dr. Scott DID receive the botulinum toxin vaccine. He reported so in one of his early 1980 papers when he was first trialing the drug on humans
ReplyDeleteI’m on year three of migraines, in addition to various other medical conditions brought on by Covid and am now disabled.
ReplyDeleteMy last verified infection was October of 2024. Since then, it’s been a rollercoaster of events more new symptoms and I already had Long Covid.
I’ve had major allergic reactions to 5 prescriptions, nerve blocks, needling, acupuncture and most recently three rounds of Botox. It’s exhausting.
My question is after my first round within a week I had allergic reactions. That’s when I think my CNS began shutting down. I reported my reactions and they just gaslight me and said it takes up to three rounds.
I went in for my second round and showed videos of my new reactions and explained my severe light & sound reactions and the doctor even said it was sensitation issues and happens with people with chronic pain. I was given a new daily pill to try, Qulipta, after two days on it, went into near anaphylactic shock. I reported it to the doctor and they didn’t even acknowledge it.
Well, I found studies that show this is common, from Botox by the NIH. It’s just that these were done after Botox was on the market and it’s clear that doctors today just say “rare side effects.”
After my third and final round, things have gotten worse, especially with my POTS and anytime I stand, eat, sleep, or drink. I was already dealing with several other health conditions, but I’m learning more about the Vagus reset and this is growing with women with people suffering from long COVID. I’m wondering if anyone has tried anything with that? I got a book and workbook to try some exercises and I get PEM and POTS immediately. Looking for some help. Have been dealing with other issues since my first Covid infection in 2020.
Appreciate anything that may have worked for any of you. :) Be well.